CDC-NPCR Success Stories Library

The CDC-NPCR Success Stories showcase how cancer registry data are used to improve public health. To ensure these stories are preserved and available as a resource to central registries and a wider audience, NCRA created this Success Stories Library. Learn how cancer registry data inform clinicians, public health departments, and researchers to advance cancer diagnosis and treatment.

The CDC-funded National Program of Cancer Registries (NPCR) is a population-based surveillance system of cancer registries established in 1992. NPCR supports the collection of high-quality data by central cancer registries through funding, technical assistance, and the development of software for collecting and processing data. Through NPCR, CDC supports central cancer registries in 46 states, the District of Columbia, Puerto Rico, the U.S. Pacific Island Jurisdictions, and the U.S. Virgin Islands. Learn more about NPCR, including accessing the U.S. Cancer Statistics Data Visualizations Tool, at https://www.cdc.gov/cancer/npcr/.

2023- Collaboration

Alaska - Collaborative Analysis on Colorectal Cancer in Alaska

Florida - New Frontiers -- Collecting Cancer Recurrence in Florida

Kentucky - Population-based Registry Data Facilitates Evidence-based Lung Cancer Screening Program Resulting in Significant Reductions in the Lung Cancer Burden in Kentucky

Massachusetts - Cancer Initiatives Unit - A Perfect Partnership for Cancer Control Collaboration

Mississippi - Improving Lung Cancer Screening and Outcomes Through the Mississippi Lung Cancer Roundtable

New Hampshire - Partnerships Using Registry Data to Address Cancer Disparities in Rural Catchment Areas

Ohio - Student Volunteers Help Dermatology Offices Overcome Barriers to Reporting

Oklahoma - Building and Maintaining A Strong Advisory Committee

Pennsylvania - The Pennsylvania Cancer Control 2023-2033 Plan

Virginia - Using Registry Data for Action in Virginia’s Updated Cancer Plan

Washington State - Redevelopment of the Washington State Cancer Registry Advisory Committee

Wisconsin - Overcoming Small Area Cancer Surveillance Challenges

2022- Collaboration

Florida - FCDS is Leading the Way-Implementing the Florida Cancer Plan through Collaboration and Partnerships

Georgia - Striving to Advance Prostate Cancer through Private and Public Partnership

Montana - Cancer Surveillance Data Guides State Cancer Planning Process

Nebraska - De-Identification Tool for HL7 Formatted Electronic Pathology Report

New Hampshire - A Quality Improvement Proof of Concept Exercising Using Pseudonymization to Identify Duplicate Cancer Cases Across State Boundaries

North Dakota - Collaboration with Setting Up Quest Data Reporting Successfully

South Dakota - The South Dakota Cancer Registry Partners with the South Dakota Cancer Coalition to Develop a Cancer Clinical Trials Dashboard

Texas - Leveraging Online Cancer Data to Identify Priority Populations for Breast and Cervical Cancer Screening

Virgin Islands - Data Contingency Plan

Virginia - Replenishing the Reporting Field from Within: Partnership to Internship

2021- Collaboration

California - Collection of Genomic Biomarkers by the California Cancer Registry: A Collaborative Pilot to Enrich Cancer Registry Data

Delaware - Addressing the Breast Cancer Burden in Delaware through Partnerships

Mississippi - Helping Mississippi Partnership for Cancer Control (MP3C) Regional Coalitions Utilize Data

Nevada - Nevada Central Cancer Registry’s Legislative Accomplishments

Oregon - Quality Partners Assure Quality Data

Puerto Rico - The Puerto Rico Central Cancer Registry - Geocoding Project: Right on Track

Tenessee - A Collaborative Approach to Addressing the Challenges Faced with Meaningful Use Reporting

Virgin Islands - When the Interstate Data Agreement is Not Just a “Sometimes” Source of Information

2020 - Collaboration

Alaska - Using Cancer Registry Data as Part of a Collaborative Partnership to Conduct a Cancer Survivor Needs Assessment

Georgia - Targeting Cancer Screening at the Worksite

Idaho - Using Cancer Data Registry of Idaho Data to Support the NBCCEDP-funded Idaho Women’s Health Check Program in Monitoring Progress Toward Health Equity Goals

Minnesota - Stakeholders Use Minnesota Cancer Reporting System (MCRS) Data in Cancer Screening Awareness Campaigns

New Jersey - A Not-So-New Partner in Cancer Surveillance? Leveraging Lexis Nexis to Enhance Demographic Information for the Benefit of Public Health

New York - New York State Governor’s Cancer Research Initiative

Pacific Island - Case Collection Conundrum in the CNMI

West Virginia - Surge Capacity Support and Collaboration with the Division of Infectious Disease during the COVID-19 Pandemic

2019 - Collaboration

Arizona - Collaborations with Federal Facilities

Delaware - Strategic Partnerships to Advanced Cancer Surveillance in Delaware

Louisiana - Registry Data as the Foundation of Taking Aim at Cancer in Louisiana (TACL)

Maryland - Collaboration to Prioritize Lung Cancer Screening in Maryland

Massachusetts - Recruitment Success: Partnering with Dana-Farber Cancer Institute to Increase Enrollment in Breast Cancer Survivorship Study

Mississippi - Addressing the Burden of Colorectal Cancer in Mississippi

New York - Cancer Among World Trade Center (WTC) Responders – a Collaboration of Three Principal Study Centers and the New York State Cancer Registry

Pohnpei State-Micronesia - Collaborations to Improve Cancer Screening in Resource-Limited Settings Using Personal Connections to Improve Cancer Screening in a Remote Island Setting

Puerto Rico - Developing the Puerto Rico CLL & AML Profile

2018 - Collaboration

Alaska - Stomach Cancer Trends across the North American Arctic: A Collaborative Project amongst Arctic Registries of the U.S. and Canada

Florida - Reporting from the Veteran Administration Facilities

Georgia - Working Together to Improve Pediatric Cancer Reporting

Indiana - Identifying the Extent of the Cervical Cancer Burden in Indiana

Kentucky - NPCR and ECC Efforts Lead to Increase in State Resources to Support Research into Kentucky’s High Incidence of Childhood Brain Cancer

Massachusetts - Cervical Cancer: What Has Age Got To Do With It?

Montana - Working Together to Describe Cancer Treatment Resources in Montana

New Jersey - Geographic Disparities in Colorectal Cancer in New Jersey

Ohio - Using Data to Reduce Disparities in Breast and Cervical Cancer Screening

South Carolina - Collboration as a Catalyst for Population Health: Using Cancer Registry Data for Evidence-based Systems Change in South Carolina

South Dakota - Collaboration to Improve Clinical Trial Participation in South Dakota

Utah - Added Value in Cancer Registry Data: Birth Certificates for Race, Ethnicity, and Place of Birth

Washington State - WSCR Data-Sharing Collaborations Highlight Potential Cost Savings for Community Partners

West Virginia - Using Registry Data to Reduce Breast Cancer Morbidity and Mortality

Wisconsin - How Wisconsin has Addressed the High Burden of Cancer Among its American Indian* Population, 2004 - 2018

Wyoming - Implementing Version18 with a Collaborative Approach

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2023 - Data Management & Reporting

Arizona - Moving the Needle with Electronic Reporting

Delaware - Utilizing Delaware Cancer Registry Data to Improve Breast Cancer Outcomes in Delaware

Minnesota - Smartsheet® Registry Submission Tracker

New Jersey - Hereditary Cancers in New Jersey: Analyzing Cancer Registry Data to Assess the Burden of Hereditary Breast and Ovarian Cancer Syndrome Related Cancers

Rhode Island - Implementation of a Standardized Template to Improve the Timeliness & Consistency of Early Case Reporting for Pediatric, Adolescent, and Young Adult Cancer Cases to the Rhode Island Cancer Registry (RICR)

US Affiliated Pacific Islands - The Next Step in the U.S. Pacific Data Visualization – Geo-mapping Cancer in the Republic of Palau

US Virgin Islands - Creating a Casefinding Tool

Utah - Development of an Electronic Provider Cancer Reporting Form using REDCap

Vermont - New Ideas and Fresh Perspectives: Improving Processing and Quality Assurance using Automation and Expertise

West Virginia - Making Cancer Data Approachable Through County-Level Statistics

2022 - Data Management & Reporting